It is as if I, and a few others, inhabit an alternate universe, when the Prime Minister of the United Kingdom, despite being in possession of the most recent reports from the IPCC and United Nations, both of which point to a devastating future should we not immediately curb and cease fossil fuel usage, proclaims …
Category archives: Blog
David Attenborough: A Life on Our Planet
The most effective and moving film on climate change to date, from someone who has witnessed it firsthand over the past ninety-three years. We are in the midst of the sixth mass extinction, the anthropocene extinction, which we, human beings, are responsible for. Things are dire. I am terrified for future generations. If we carry …
Good News Network – The Extraordinary Alchemy of Positive Action
A seemingly magical thing happened in late 2016. I received a phone call, out of the blue, from a dear old friend, Sara Caplan, who said, quite simply, “Nick, I think I can help.” Over two years earlier, in June 2014, my young sons Theo and Oskar had been diagnosed with Duchenne muscular dystrophy, a …
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The Huffington Post – Love Really Can Conquer All
It was World Duchenne Day on 7 September. Much happens in the community, as parents around the world continue to strive for a significant treatment or cure for their sons: there is nothing quite like the motivation of a parent watching their child grow weaker by the day. We will do anything for our children, …
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The Huffington Post – How Duchenne Has Changed Me
I am not as I was. I am a changed man. Life has changed me. Duchenne has changed me. I, we, will beat the fucker, that is the fatal disease, Duchenne muscular dystrophy, which Theo, Oskar and thousands of other boys worldwide have, and which will kill them. The diagnosis gives us parents, of Duchenne boys, …
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The Huffington Post – I Cannot Walk, Daddy!
I did not think it would be this soon, just after his fifth birthday, that his legs would finally fail him. Bocketts Farm in Fetcham, Surrey, Saturday morning, and Theo stumbles over to me from the softplay on his toes, legs quivering below the knees. “I cannot walk, daddy! My legs hurt.” With these words, …
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The Huffington Post – Blue Hair Day
This Sunday 26th June is Blue Hair Day, a brilliant annual flagship campaign run by Harrison’s Fund cooked up by a bunch of big-hearted mums to raise awareness and funds for Duchenne muscular dystrophy. The idea to go blue for the day, sport a silly wig and get involved in the Duchenne cause first came …
The Huffington Post – Friends Like These
I write this post over a week after we completed The Big Bad Ride, a 460-mile endurance cycle from Edinburgh to London in aid of Harrison’s Fund, a small charity working hard to find a cure for Duchenne muscular dystrophy, a fatal disease which affects my two young sons, Theo and Oskar. I am indebted …
The Huffington Post – The Big Bad Ride
This week I embark on a bloody long cycle from Edinburgh to London with a number of old school friends. Why we lost touch I do not not know, but that we are in touch again, and will be together as we make our long way down, fills me with joy and wonder. Tragedy has …
The Huffington Post – The Duchenne Clock
The Huffington Post, 24 June 2015 – I wake suddenly and breathlessly, eyes springing open, heart thudding like a drum, as if I am a soldier on perpetual watch, and my first thoughts are for my sons. Theo fell three times yesterday, I think. His legs simply gave way. He could not keep up with …