Nick TaussigA seemingly magical thing happened in late 2016. I received a phone call, out of the blue, from a dear old friend, Sara Caplan, who […]
Category: Human Interest
The Huffington Post – Love Really Can Conquer All
It was World Duchenne Day on 7 September. Much happens in the community, as parents around the world continue to strive for a significant treatment […]
The Huffington Post – How Duchenne Has Changed Me
I am not as I was. I am a changed man. Life has changed me. Duchenne has changed me. I, we, will beat the fucker, that […]
The Huffington Post – I Cannot Walk, Daddy!
I did not think it would be this soon, just after his fifth birthday, that his legs would finally fail him. Bocketts Farm in Fetcham, […]
The Huffington Post – Blue Hair Day
This Sunday 26th June is Blue Hair Day, a brilliant annual flagship campaign run by Harrison’s Fund cooked up by a bunch of big-hearted mums […]
The Huffington Post – Friends Like These
I write this post over a week after we completed The Big Bad Ride, a 460-mile endurance cycle from Edinburgh to London in aid of […]
The Huffington Post – The Big Bad Ride
This week I embark on a bloody long cycle from Edinburgh to London with a number of old school friends. Why we lost touch I […]
The Huffington Post – The Duchenne Clock
The Huffington Post, 24 June 2015 – I wake suddenly and breathlessly, eyes springing open, heart thudding like a drum, as if I am a […]
The Huffington Post – What will my sons do now?
The Huffington Post, 20 March 2015 –I last wrote about the diagnosis of my two young sons with Duchenne muscular dystrophy, a fatal genetic muscle […]
The Guardian – Our beautiful sons could die before us
The Guardian, 16 August 2014 – Our beautiful sons could die before us: Nick Taussig thought his son Theo was a bit of a late developer. If […]